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Parents launch mobile health-record challenge

Original post made on Feb 8, 2015

The parents of a 2011 Palo Alto High School graduate who died from meningitis have launched a campaign to teach people how to access their health records on their phones.

Read the full story here Web Link posted Sunday, February 8, 2015, 8:29 AM

Comments (4)

Posted by patrick simon
a resident of Crescent Park
on Feb 8, 2015 at 10:36 am

Data security, HIPPA and PII protection from end to end may not be at a acceptable level (see NIST)School district data systems certainly have systems security issues. Caution âš  is advised here.

Posted by resident
a resident of Another Palo Alto neighborhood
on Feb 8, 2015 at 10:40 am

I'm so sorry for this family's loss. It's so true about health records, being a patient is kind of like having to fly a plane from the back seat. You wish you could either have some one else fly or let you in the front seat. It's so hard to just get a record from one place to another and then to have it sent to you is a nightmare. Even when the staff at one place is working really hard, it can take ages to get records moved. I think part of the problem here, though, is how hard it is to get records kept in a central place. We use PAMF but even there, not all the records are accessible electronically, and moving records from outside is hard.

I'm really thankful for this effort, though. I wonder if anyone would please share more information about new meningitis vaccinations?

Posted by Pat Burt
a resident of Community Center
on Feb 9, 2015 at 8:45 am

Thanks again to the Benatar family who continue to lead and inspire us to help each other, just as Emily did. Our daughter Carolyn captured it best when she said that Emily "taught her to be brave".

Posted by Sally Bemus
a resident of Community Center
on Feb 9, 2015 at 12:26 pm

Just to clarify, the website for Emily’s Way Project: Web Link
does not collect any personal health data. You just add your name to the list, you can use a nickname, to affirm that you have mobile access to your health records. It can be full web access or a photo of vaccination records stored on your phone.

To all my friends who have still not signed up (you know who you are) do it today!

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