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How childless seniors can navigate the future without a family caregiver

'Solo agers' can find assistance at upcoming virtual event

Ros watches as her husband John gets up from a chair with the use of a walker in their backyard in Sunnyvale on Jan. 27, 2022. Photo by Magali Gauthier.

Ros and John know firsthand the particular challenges of navigating old age alone. The longtime married couple, who agreed to share their story but asked that their last names not be published to protect their privacy, are childless and without immediate family to provide them needed care as they age.

John, a software engineer, was diagnosed with cancer in 2005 at age 49, and had to stop working the following year. He now has difficulty walking, suffers from frontotemporal dementia and needs considerable care. Ros, who is in her 60s, looks after him at home as she continues to work remotely for Stanford University.

The pair immigrated to the United States from England 37 years ago, and without family, Ros worries about who will care for John should she become incapacitated.

"I'm coping on my own as we navigate his illness, which we've been doing for over 15 years," she said. "I have many friends, but you can't ask friends to do what you would ask family. It's a huge concern."

Ros and John are not alone. More than 15 million American adults over 55 — nearly 1 in 6 — do not have children, according to the U.S. Census Bureau. And the bureau projects that "levels of childlessness among older adults" will increase in coming years.

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Without adult children to help in case they're no longer able to care for themselves, "solo agers" have particular challenges in planning for their futures, said Paula Wolfson, manager of social work and caregiving for the Palo Alto senior services agency Avenidas.

On Wed., Feb. 16, Avenidas will host a free, virtual discussion with retirement coach and author Sara Zeff Geber on how seniors without family or others to help can find resources and make an aging solo plan. "Meeting the Challenges of Solo Aging" is part of the "Aging Wisely" town hall series sponsored by Avenidas.

"Solo agers have literally called me from the hospital because they're going to be discharged and they don't have anybody at home, don't have any way to get food," Wolfson said.

For those with money, hiring in-home care or paying roughly $10,000 in monthly fees to live in a care facility are possibilities, but most do not have such resources, she said.

"Middle- to low-income solo agers — teachers, office workers, social workers — cannot afford to age here if they become frail," Wolfson said. "You can maybe have $200,000 or $300,000 in a Fidelity Investments account, but that's not going to last very long when you're paying $10,000 a month (for a care facility) or in-home care."

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Wolfson knows of many seniors who have moved to lower-cost areas, such as Idaho and Oregon, or have moved in with friends.

Rich or poor, it's especially important for solo agers to focus on proactive planning, she said.

"Do you have a durable power of attorney designated in case you have difficulty with health care or financial decision-making? That is the key," she said.

Ros opens a side door for her husband John as he heads back into their house in Sunnyvale on Jan. 27, 2022. Photo by Magali Gauthier.

Ros said she has researched options and has interviewed professional fiduciaries, who charge by the hour, to provide daily care and other services that a family member might typically take on.

"I've found one I'm very comfortable with," she said. "I'd prefer a friend to do it, but it's way too much to ask a friend to do."

She has yet to formalize arrangements with the fiduciary. She does take some comfort, however, in the fact that if all else fails, every county has a conservatorship process, which allows a judge to put a conservator in charge of making sure a person has proper food, clothing, shelter and health care.

The Santa Clara County Office of the Public Guardian, which handles conservatorships, was managing more than 1,400 cases as of November 2019, according to a 2020 Santa Clara County Civil Grand Jury report.

Geber said people of any age may temporarily or permanently lose the ability to care for themselves, "but the odds go up dramatically as we get older."

'Middle- to low-income solo agers — teachers, office workers, social workers — cannot afford to age here if they become frail.'

-Paula Wolfson, manager of social work and caregiving, Avenidas

The proportion of solo agers will only increase in coming years because younger cohorts are increasingly not having children, according to data from the U.S. Census Bureau. For example, of all adults 55 to 64, 19.6% were childless, according to census data from 2018. Of those ages 65 to 74, 15.9% were childless, and of those 75 and older, 10.9% were childless.

"About 22% of adults are, or will be, their own sole caregiver in old age," according to the census bureau's "Childless Older Americans" report released in 2020. "Such adults have no known family member or designated surrogate or caregiver they can count on for support."

Much of Geber's planning advice — such as completing an advance health care directive or designating someone to have power of attorney — applies not just to solo agers but to all older adults, too.

For those without children, including Geber, "ties with friends, siblings, nieces and nephews and even community tend to be (and should be) more prominent," she said.

For more information or to register for the "Meeting the Challenges of Solo Aging" event, go to avenidas.org.

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Contributing writer Chris Kenrick can be emailed at [email protected]

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How childless seniors can navigate the future without a family caregiver

'Solo agers' can find assistance at upcoming virtual event

by / Contributor

Uploaded: Fri, Feb 4, 2022, 6:49 am

Ros and John know firsthand the particular challenges of navigating old age alone. The longtime married couple, who agreed to share their story but asked that their last names not be published to protect their privacy, are childless and without immediate family to provide them needed care as they age.

John, a software engineer, was diagnosed with cancer in 2005 at age 49, and had to stop working the following year. He now has difficulty walking, suffers from frontotemporal dementia and needs considerable care. Ros, who is in her 60s, looks after him at home as she continues to work remotely for Stanford University.

The pair immigrated to the United States from England 37 years ago, and without family, Ros worries about who will care for John should she become incapacitated.

"I'm coping on my own as we navigate his illness, which we've been doing for over 15 years," she said. "I have many friends, but you can't ask friends to do what you would ask family. It's a huge concern."

Ros and John are not alone. More than 15 million American adults over 55 — nearly 1 in 6 — do not have children, according to the U.S. Census Bureau. And the bureau projects that "levels of childlessness among older adults" will increase in coming years.

Without adult children to help in case they're no longer able to care for themselves, "solo agers" have particular challenges in planning for their futures, said Paula Wolfson, manager of social work and caregiving for the Palo Alto senior services agency Avenidas.

On Wed., Feb. 16, Avenidas will host a free, virtual discussion with retirement coach and author Sara Zeff Geber on how seniors without family or others to help can find resources and make an aging solo plan. "Meeting the Challenges of Solo Aging" is part of the "Aging Wisely" town hall series sponsored by Avenidas.

"Solo agers have literally called me from the hospital because they're going to be discharged and they don't have anybody at home, don't have any way to get food," Wolfson said.

For those with money, hiring in-home care or paying roughly $10,000 in monthly fees to live in a care facility are possibilities, but most do not have such resources, she said.

"Middle- to low-income solo agers — teachers, office workers, social workers — cannot afford to age here if they become frail," Wolfson said. "You can maybe have $200,000 or $300,000 in a Fidelity Investments account, but that's not going to last very long when you're paying $10,000 a month (for a care facility) or in-home care."

Wolfson knows of many seniors who have moved to lower-cost areas, such as Idaho and Oregon, or have moved in with friends.

Rich or poor, it's especially important for solo agers to focus on proactive planning, she said.

"Do you have a durable power of attorney designated in case you have difficulty with health care or financial decision-making? That is the key," she said.

Ros said she has researched options and has interviewed professional fiduciaries, who charge by the hour, to provide daily care and other services that a family member might typically take on.

"I've found one I'm very comfortable with," she said. "I'd prefer a friend to do it, but it's way too much to ask a friend to do."

She has yet to formalize arrangements with the fiduciary. She does take some comfort, however, in the fact that if all else fails, every county has a conservatorship process, which allows a judge to put a conservator in charge of making sure a person has proper food, clothing, shelter and health care.

The Santa Clara County Office of the Public Guardian, which handles conservatorships, was managing more than 1,400 cases as of November 2019, according to a 2020 Santa Clara County Civil Grand Jury report.

Geber said people of any age may temporarily or permanently lose the ability to care for themselves, "but the odds go up dramatically as we get older."

The proportion of solo agers will only increase in coming years because younger cohorts are increasingly not having children, according to data from the U.S. Census Bureau. For example, of all adults 55 to 64, 19.6% were childless, according to census data from 2018. Of those ages 65 to 74, 15.9% were childless, and of those 75 and older, 10.9% were childless.

"About 22% of adults are, or will be, their own sole caregiver in old age," according to the census bureau's "Childless Older Americans" report released in 2020. "Such adults have no known family member or designated surrogate or caregiver they can count on for support."

Much of Geber's planning advice — such as completing an advance health care directive or designating someone to have power of attorney — applies not just to solo agers but to all older adults, too.

For those without children, including Geber, "ties with friends, siblings, nieces and nephews and even community tend to be (and should be) more prominent," she said.

For more information or to register for the "Meeting the Challenges of Solo Aging" event, go to avenidas.org.

Contributing writer Chris Kenrick can be emailed at [email protected]

Comments

Online Name
Registered user
Embarcadero Oaks/Leland
on Feb 4, 2022 at 1:13 pm
Online Name, Embarcadero Oaks/Leland
Registered user
on Feb 4, 2022 at 1:13 pm

Interesting article, thanks.

Re the durable power of attorney, I've heard countless stories from friends fighting long, hard and mostly failing to get clearly stated DNRs (Do Not Resuscitate) provisions honored, including one practicing medical doctor who fought with her mother's nursing home for a year while the bills kept coming.

What's to be done?


Green Gables
Registered user
Duveneck/St. Francis
on Feb 4, 2022 at 1:30 pm
Green Gables, Duveneck/St. Francis
Registered user
on Feb 4, 2022 at 1:30 pm

What about Medicare? Does it not finance something?


TorreyaMan
Registered user
Palo Verde
on Feb 4, 2022 at 6:10 pm
TorreyaMan, Palo Verde
Registered user
on Feb 4, 2022 at 6:10 pm

Medicare does not pay for long term care.


MyFeelz
Registered user
another community
on Feb 4, 2022 at 8:01 pm
MyFeelz, another community
Registered user
on Feb 4, 2022 at 8:01 pm

A power of attorney only allows someone to manage your affairs if you are unable to do (if it's set up that way). An Advance Health Care Directive is the document you need to allow someone to speak for you, should you be unable (and it has to be documented properly). A bright pink POLST is something every aging single person should have displayed prominently somewhere near an entrance someone might come through to assist you in an emergency. There is no national POLST registry yet, but if there were it would be a boon to society because no matter where you go, if your POLST is accessible to health care practitioners, it clearly states what YOU wish to happen during a medical emergency. An ACHD and POLST are recognized by doctors as legal documents (if they are properly executed). Doctors will abide your wishes unless you have a pushy relative who can convince doctors to ignore your wishes and do something else. So if you do have meddling distant relatives who would show up on your deathbed just to make your last minutes on earth a living hell, make sure your ACHD mentions them by name, and deny them access to you, your property and your personal items.


Online Name
Registered user
Embarcadero Oaks/Leland
on Feb 4, 2022 at 9:24 pm
Online Name, Embarcadero Oaks/Leland
Registered user
on Feb 4, 2022 at 9:24 pm

MyFeelz, it also works in reverse where doctors ignore pushy relative's wishes to end their relatives' suffering. It's happened too often to be coincidence and that's why I cited my medical doctor friend's experience. She spent a year fighting to force her mother's care place to honor the DNR when it was clear her mother was long past any medical help.


Carol Scheufele
Registered user
another community
on Feb 5, 2022 at 11:25 am
Carol Scheufele , another community
Registered user
on Feb 5, 2022 at 11:25 am

In my humble view hospital based care & the like has evolved tremendously (as you well know). In the process they shed their longer term care wards or scraped building them. The result of these complex patients being transferred to what’s out there (from what I have witnessed) is shocking. There is a real disconnect that needs to be ironed out (by more than just giving the nurses more paperwork) so that less run of the mill patients can be guaranteed of receiving bona-fide “comfort care” when they sign DNR forms.


Fritzie Blue
Registered user
Stanford
on Feb 6, 2022 at 10:32 pm
Fritzie Blue, Stanford
Registered user
on Feb 6, 2022 at 10:32 pm

A major frustration in dealing with my elderly father's affairs while he was going downhill with health problems and dementia was that his bank would not accept his POA, even though the box was checked that covered financial matters. The bank needed many copies of the POA which they said they were sending to Legal, but I never would hear from them. Next time I would go in we had to start afresh. This added greatly to the existing stress of overseeing his care.

I would love to see a regular column here that deals with these various issues surrounding old age. Many of us Baby Boomers and others could certainly benefit from such knowledge.


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