Clinical trials: To participate or not?
Original post made on Feb 25, 2014
Read the full story here Web Link posted Wednesday, November 8, 2006, 12:00 AM
on Feb 25, 2014 at 7:02 am
I am usually just fine participating in clinical trials. A lot of times I actually have a lot fun doing the trials. I actually only got sick once. Thiago | Web Link
on Feb 25, 2014 at 2:27 pm
There really are not many clinical trials in the US anymore, especially compared to Europe and Asia. I have found through my own research, that the huge majority of clinical trials are in China, France, and Germany.
Even my doctor tried to find clinical trials for me to participate in, since it would be a way to get cheap or free medication. Yet, all of the studies being done on my particular disease were in Beijing or Berlin, and the Beijing studie indicated that Caucasians were not welcome. With the Berlin studies, I would have had to live in Berlin for two years, or commute back and forth every ten days. Expensive and impractical.
So I am stuck with very expensive medication with a 30% copay ($950/month), which is not sufficiently effective.
on Feb 26, 2014 at 10:12 am
Did it once - worked well for me. Seriously **worked well** for me.
Was a pill that had been approved years ago for other uses in the US. Approved overseas for the new use also - so I felt it was safe (clinical trials hate what you can find in google!)
I clearly did not get the placebo - my lifelong, chronic condition cleared up. Has slowly tried to come back post-trial, but not anywhere near as bad. A true quality of life improvement.
Post trial, talked to the trial doc, he felt I was previously under-treated by my series of 'normal' docs. Was educational, enlightening.
To this day, I thank heavens I didn't get the placebo. Even if I had, I still had access to better info and help than before; that may or may not apply to other trials, of course.
See the Stanford trial list. Easily searchable, and links to the NIH trials in other areas (no international, iirc.) If you're in the Stanford area, you're really lucky to have the option.